Nortriptyline for Vulvodynia User Reviews
Brand names: Pamelor
Nortriptyline has an average rating of 7.1 out of 10 from a total of 8 reviews for the off-label treatment of Vulvodynia. 63% of reviewers reported a positive experience, while 13% reported a negative experience.
Reviews for Nortriptyline
- Natalie
- Taken for less than 1 month
- May 2, 2019
"I started taking nortriptyline at only 10MG for vulvodynia, as soon as I started I noticed difficulty in urinating, after a week I saw my GP who told me to increase the dose to 20 MG, the pain was getting considerably worse and when setting I was getting shooting pains, my mood has changed dramatically dark thoughts, severe depression and anxiety, I now have panic attacks, and my nerve pain has sky rocketed! I was told to tolerate the side effects but they have become so severe that I am now unable to sit without a toilet seat! I saw a consultant who diagnosed me with Pudendal neuralgia, I never had these symptoms before taking nortriptyline!! ....... this medication has ruined my life!!!!! There is no one out there that than offer me an explanation?? I only took this medication for four weeks, I have been off this now for 6 1/2 weeks and there have been no improvement whatsoever, the nerve pain is so bad! I wish I’d never heard of this dreaded medication!"
- Anonymous
- Taken for 10 years or more
- February 27, 2013
"This medicine completely helped my vulvodynia. At my worst before the medication, I was in constant burning pain and could not sit down for extended periods of time. Nortriptyline started working for me after about two weeks. At first I was a little dizzy and very sleepy. I did have more constipation. But the sleepy/dizzy feeling did wear off, and I was so happy to have the edge taken off the pain, I didn't mind the side effects. I was on it for about 10 years with minimal pain flareups. I am doing better now. The pain is not completely gone, but nortriptyline was the answer I needed."
Frequently asked questions
- maryk...
- April 24, 2015
"Started at 10mg & pain lessened overnight! After few weeks, stepped up to 20mg, more improvement. In last few days upped to 30mg & I am almost discomfort free. This is after suffering on & off for some years. Plus my recurrent migraines have stopped. And pain from both knee osteoarthritis & wry neck very improved. So, yes, this medicine worked for me. Side effects were transient & tolerable."
- sally...
- October 27, 2015
"I had vulvodynia for around 11 years Nortriptyline helped a great deal but I gradually reduced dose from 30ml to 10ml what really helped was activan medical honey every night a small amount on cottonwool bud helps heal the tissues in the vulva I am 78 years and was determined to find a cure."
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- Dee
- March 31, 2021
"This medication took the pain away completely however I started having dark thoughts, and felt depressed and my heart rate elevated dramatically. I had suicidal thoughts. Such a shame as it worked but I had to come off it. Still trying to find a medication without unbearable side effects"
- Dano
- Taken for less than 1 month
- March 11, 2021
"Took the pain away immediately after suffering for years of undiagnosed vulvodynia. Side effects awful dizzy, nausea, constipation. Past after a week. However started to get depressed and anxiety. Was feeling suicidal. My heart rate elevated. Had to come off pain returned but moods improved."
- Anonymous
- January 27, 2012
Pamelor (nortriptyline) "It totally resolved my vulvar pain and I also made me more patient and less irritable with my children. "
- Anonymous
- January 4, 2011
Aventyl Hydrochloride (nortriptyline) "Nortriptyline lessened the discomfort for maybe a couple of months, but then it stopped working."
- SarahC
- Taken for 1 to 6 months
- January 12, 2021
"I use 75mg of nortriptyline for vulvodynia and it has cured me. I am so relieved. No side effects at all. So much better than amitriptyline awful side effects."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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Pamelor, Aventyl Hydrochloride
"For anyone out there searching for answers to their neuropathic pain this was mine. I have only been taking this drug at 10mg for 3 weeks and I have already begun to see huge improvements. I suffer from pudendal neuralgia and have tried nerve blocks, gabapentin, pregabalin, physical therapy, acupuncture, NSAIDs, benzos, the list goes on. Nortriptyline was my last resort and it has changed my life. My pain has reduced by 80%, I can wear the clothes I want, sit for longer periods of time, and be intimate with my SO. Don’t let the fact that it is an antidepressant deter you from taking this drug. It is a life saver."